Macquarie University
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Quality of life in Primary Progressive Aphasia: characteristics, influences and implications

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posted on 2022-03-28, 22:54 authored by Leanne Ruggero
Primary Progressive Aphasia (PPA) is an emerging area of speech pathology practice. Despite its cross over with stroke-aphasia and dementia presentations, both fields in which quality of life has been investigated, limited research has investigated quality of life in PPA. This study conducted four health-related quality of life assessments with six individuals with PPA. Health-related quality of life was found to be individual and heterogeneous: some individuals maintained good health-related quality of life despite linguistic impairment, whereas three out of six participants screened positively for depression. Factors noted to influence health-related quality of life, or reported as particularly important to participants, included: maintaining enjoyable activities, financial situation, family and speech pathology support, and time since and reaction to PPA diagnosis. Linguistic and cognitive impairment were not related to health-related quality of life in this study, although the small sample size is noted as a limitation. Those individuals without severe semantic impairment were able to more reliably report on their health-related quality of life. Implications for assessment of quality of life in PPA and multidisciplinary care of people with PPA are discussed -- abstract.


Table of Contents

Introduction -- Participants -- What do people with Primary Progressive Aphasia report about their health-related quality of life using the chosen assessments? -- Which factors mediate the impact of Primary Progressive Aphasia on health-related quality of life? -- General discussion -- Conclusion -- References -- Appendices.


Bibliography: pages 67-78 Theoretical thesis.

Awarding Institution

Macquarie University

Degree Type

Thesis MRes


MRes, Macquarie University, Faculty of Human Sciences, Department of Cognitive Science

Department, Centre or School

Department of Cognitive Science

Year of Award


Principal Supervisor

Lyndsey Nickels

Additional Supervisor 1

Karen Croot


Copyright Leanne Ruggero 2017. Copyright disclaimer:




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